The past 24 hours have been some of the most challenging and rewarding hours of this whole ordeal with Brooks.
After his extubation yesterday, he was requiring support from CPAP to breath comfortably.
He not only didn't like CPAP, he hated it. He hated it so much that he was inconsolable for the majority of the time on it. So much so that in his rage he ripped out his central line in his neck.
Thankfully, this morning the doctor agreed that we should attempt a lower oxygen support for him and the CPAP was removed. He still has support of continuous airflow but it isn't as strong as CPAP. It is tolerable for Brooks and he is more pleasant.
Because he was sedated for so long, he is dealing with some withdrawal from the medication.
He is running a bit of a high temp and seems a bit jittery and difficult to calm.
However, this is still a step in the right direction.
Today he was able to be held and he even nursed!
As soon as I held him he began to root and we were both so thankful to hear that we could try eating.
He did well so the feeding tube was removed tonight.
During our first feeding, Brooks looked me right in the eye and smiled so big. It was just what I was waiting for.
During our first feeding, Brooks looked me right in the eye and smiled so big. It was just what I was waiting for.
Marie was anxious to give Brooks a box of butterflies and prayers from her classmates as well as hold her little brother.
Although this is not home, we treated our room as such. We each did our own thing pretending the hospital room was our living room. The kids colored, watched a movie, ate supper, and we went for a walk to enjoy the mild weather.
Aunt Keri and Uncle Paul also visited this evening.
We can't even begin to thank all the people for prayer, calls, texts, and support.
It is so humbling to know our little family has that many people pulling for us.
Tomorrow we are hoping that we can continue to wean the oxygen support, increase Brooks' nursing, and wean from the last few medications.
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